Cloves syndrome is a rare genetic disorder, which affects the growth and development of organs and systems in the patient’s body. Every year, August 3 is celebrated as Cloves Syndrome Awareness Day. Clovis Syndrome Awareness Day is celebrated across the world to raise awareness about the rare disease. Learn about this day in detail, but first let’s know a little about this rare disease.
What is Cloves Syndrome?
Cloves syndrome is a rare genetic disorder that affects babies from birth. This problem is caused by a mutation in the PIK3CA gene and can manifest in many ways such as abnormalities in bones, joints, or blood vessels. Less than 200 cases of the disease have been reported worldwide.
Why is Cloves Syndrome Awareness Day celebrated?
Cloves Syndrome Awareness Day is observed on August 3 every year to raise awareness about the disease. It is very important to make people aware of this rare disease.
History of Cloves Syndrome Awareness Day
In Cloves syndrome deformities arise in the patient due to overgrowth of tissues. This disease affects both the physical and mental health of a person. Therefore, in 2010 the Clovis Syndrome Community began to celebrate this day. The purpose of celebrating this day is to start a campaign for this, tell people about how to reduce the challenges associated with it, promote awareness and stand in solidarity with the people suffering from Clovis Syndrome.
The Importance of Cloves Syndrome Awareness Day
Cloves Syndrome Awareness Day is important in many ways, such as celebrating this day allows people to learn more about the disease. This helps in early detection and treatment of the disease. Not only this, it reduces misunderstandings among people and promotes empathy and support for the patient. It also encourages fundraising efforts for organizations dedicated to helping people with Cloves Syndrome.
On Cloves Syndrome Awareness Day, workshops, online campaigns, media coverage, events, educational webinars, etc. are conducted to make people aware.
